Deliverable 2.4 provides the second report of the GenoMed4All Ethical Advisory Board (EAB). This report has been compiled after the first meeting of our Ethics Advisory Board (EAB) held on 19th January 2022 -a recap can be found here-, and a subsequent set of meetings in November 2022.
Abstract
Following the completion of the previous meeting and submission of D2.2, GenoMed4All focused its efforts on developing the mapping and ethical principles identified in the previous meeting, but had to address as a priority the changing expectations around GDPR compliance and development of the data sharing agreements. Identification of the roles of GenoMed4All partners had to be prioritised, and a new Joint Controller Agreement Template had to be agreed by the partners. This underpinned the compliance requirements that were being overseen by the EAB. Due to regulatory changes and evolved interpretations in several jurisdictions, including France and Italy respectively, the agreements and approaches had to be updated.