Patient Engagement e-Workshop

A meeting with Myelodysplastic Syndromes, Multiple Myeloma andSickle Cell Disease European patients’ associations


ONLINE – September 30th, 2021

Welcome to the e-workshop: GenoMed4All – A meeting with Myelodysplastic Syndromes, Multiple Myeloma and Sickle Cell Disease European patients’ associations.

The aim of this meeting is to provide an overview of GenoMed4All’s mission, clinical pilots and relevant AI use-case applications to representatives of major patients’ associations in Europe covering Myelodysplastic Syndromes, Multiple Myeloma and Sickle Cell Disease, the 3 clinical areas related to the project. The meeting is organised by the GenoMed4All consortium, in collaboration with ERN-EuroBloodNet.

The e-Workshop will be held on Thursday, September 30th 2021, from 6:00 PM to 7:30 PM CET.


Speakers will present the cutting-edge advances in Artificial Intelligence (AI) for the diagnosis, treatment and follow up of those rare haematological domains, underlining the increasing role of AI in improving and accelerating patient access to personalized medicine. At the end of the presentations, an open discussion will follow to gather patients’ representatives’ feedback, and discuss their issues, needs and expectations in view of increasingly involving patients’ advocates in the development of clinical AI tools.

AGENDA

Welcome by GenoMed4All’s Project Coordinator – Federico Álvarez, Universidad Politécnica de Madrid

ERN-EuroBloodNet Lymphoid ePAGs – Ananda Plate, Myeloma Patients Europe

ERN-EuroBloodNet Myeloid ePAGs – Sophie Wintrich, MDS Alliance

EURORDIS – Ariane Weinman

Myelodysplastic Syndromes – Matteo Della Porta, Humanitas Research Hospital

Multiple Myeloma – Elena Zamagni, Alma Mater Studiorum Università di Bologna

Sickle Cell Disease – Raffaella Colombatti, Università degli Studi di Padova

AI advances in diagnosis, treatment and follow-up – Gastone Castellani, Alma Mater Studiorum Università di Bologna

Open audience Q&A